My M.S. Update

How are you?  You feeling OK?

I answer these two questions constantly. Most often asked by folks I don’t see on a regular basis. And since my job includes a group of 1,400 people, the rotation of folks that I don’t see on a regular basis, is well, regular.

It’s been awhile since I updated on my health.  I still have MS – it doesn’t go away but my symptoms are manageable. I’m still following a primarily plant-based diet and still practice self-care by speaking life to myself each day, and trying to keep my stress level low(er), as well as doing things that allow “me” time, such as massages and manicures.

I think the biggest thing is that I’m super, almost hyper, sensitive to every nuance in my body and how I feel. I swear that during stressful times I can feel each strand of hair on my head move. I try hard to remember that each day is just a day and that a bad day doesn’t mean a bad life. A bad food decision doesn’t ruin a day; it’s just a bad decision.  The problem with that last one though is that I’ve given myself a lot of grace…and I mean a LOT of grace. I can’t really explain it except to say that maybe I’ve been so successful that I feel like I can’t fail? And that’s a hard mindset (for me) to overcome. Maybe it’s because for the past few years, people allowed me to live by excuses… if I was angry, I had right to be; if I was sad, I had a right to be; if I was snippy or rude, I had a right to be; if I needed a night of binge eating following by laziness, I had a right to be.

The reality is that it’s a privilege to be surrounded by friends that understand that there will be days that I’m still angry, sad, rude or snippy. But they are excuses, and I don’t have the right to keep using what happened to me to still control me and allow me to get away with the lack of common courtesy. It’s the same with MS. Yea, it sucks to think that I have something that will forever be a part of my life. But Lord, help me to remember that it’s a part of my life – it’s not my life.  It’s forever going to guide me, but I don’t want to give it so much control that it leads me.

So, right now, I’m struggling mentally with accepting the limitations of what I should eat. It’s easy to have and experience success short term, like I did from August to December last year. I have medical evidence that the plan I am following does work for me. But now, I’m feeling the weight of having to do this every day for the rest of my life.  I’m not angry that this is my life. I accept the story that is mine knowing that somewhere, somehow there is a plan and a purpose. This body is just a shell – just a physical manifestation of a life that I believe I will have for eternity. And in the end, no matter the emotional, mental, physical struggle that each day brings me I know one thing to be absolutely true….

I may not have signed up for this life but I’m damn sure going to show up for it.

 

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One thought on “My M.S. Update

  1. OMG … Z… I can not tell you how uplifting your words are for me… lots of food for thought… I always thought you we a pretty incredible person and reading your blog confirms that… sounds like youre well on your way to healing from both the emotional and physical cards that have been dealt to you… I will save your blog and read it often whenever when I begin to question what’s going on with life… Im also so happy you have not given up on marriage… it would make me very sad to think you would not share your special self with someone equally as special…you go girl…some of us are just slow learners!!! Look forward to your updates🙅🙅😍😍

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